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Please
read below to find out what the money you are helping us to
raise is being spent on:
Billee has a wonderful therapist from The Royal Institute for
deaf and blind children called Ana who visits us weekly to assist
Billee with visual development.
Ana is a fantastic help to us and is fast becoming like one of
the family!
Her services are government funded.
For Billee to have the best chance of developing further we feel
that she needs constant and continuous intense therapy
which can obviously only be carried out by us, her parents.
Because of this Billee is currently involved in a
programme called MAPS.
MAPS is a multi sensory therapy based on brain plasticity and
the ability of the brain to repair itself.
Billee also participates in ABR (advanced bio-mechanical
rehabilitation).
Both of these programmes are not funded and are very expensive
and this is the reason why so many fantastic people are fundraising
for Billee.
MAPS
We work with Claudie Gordon-Pomares who is based in Canada.
Claudie has visited Australia only twice. The first time was
when we met her and Billee started the programme and the second was
for her re assessment.
MAPS is a multi sensory programme of specific exercises giving
the brain information to help it to grow and create new neuron
pathways.
It is a very non invassive and passive therapy.
Billee is the only child in the world with Lissencephaly
currently on the MAPS programme and she is the only child with her
level of disability in Australia participating in MAPS.
For more infomation regarding MAPS please visit www.unlimitedbrain.com
ABR
THERAPY
The ABR technique addresses the structure of the body to
hopefully help improve function. ABR gradually repairs the
"core structures" of the internal muscles - the myofascia - by
applying a technique of gentle application of pressure by hand
using specialised materials.
This technique improves the volume and tone of the myofascia
which gradually in turn improves the musculoskeletal structure and
creates improved capacity for functions such as better swallowing,
eating, drinking and breathing, sitting in a balanced, independent
way; more stable weight-bearing and more effective use of arms and
hands.
There is also an ABR machine that can be hired to perform
extra hours over night while your child is
sleeping.
For more information regarding ABR please visit www.abrtherapy.com
YOUR GENEROSITY, ENTHUSIASM
AND WORDS OF ENCOURAGEMENT ARE HELPING US TO STAY
POSITIVE.
PLEASE CONTINUE TO HELP US TO
HELP OUR
BEAUTIFUL LITTLE
BILLEE......
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